Powerful and passionate, Care Work is a crucial and necessary call to arms. " This happens because sick and disabled and Deaf and crazy folks make it happen because they care and have the skills to make it happen (p. 154). Something unprecedented and LOUD. Essays in Section I describe the historical and ongoing exclusion of queer and trans disabled people of colour from mainstream disability frameworks. Piepzna-Samarasinha encourages the use of care webs, which are groups of individuals (who may be disabled, able-bodied/not disabled, or a mixture) who work together to provide care and access to resources for each other. Erickson created a friend-made care collective as a survival strategy to give and receive necessary care, like being transported from her wheelchair to the bathroom or her bed. Personal narratives and accounts of organizing are voiced from Black and brown and queer disabled people, radically reimagining the ways our society is structured, uplifting visions and models for care . Because it does. Go to the events page to find more information. I am dreaming like my life depends on it. Ableism and poverty and racism mean that many of us are indeed in bad moods. Aadir a mi cesta. Care Work: Dreaming Disability Justice Paperback - Oct. 1 2018 by Leah Lakshmi Piepzna-Samarasinha (Author) 266 ratings See all formats and editions Kindle Edition $11.99 Read with Our Free App Audiobook $0.00 Free with your Audible trial Paperback from $16.53 4 Used from $16.53 12 New from $16.60 Audio CD Disability justice must include the feelings, thoughts, and voices of disabled people. WorldCat is the worlds largest library catalog, helping you find library materials online. This book reinvigorated me to fight for a social safety net as well as prioritizing disability justice in my own communities. Edie thinks she has her disability under control until she meets her match with a French 102 course and a professor unwilling to help her out. The book is thus challenging to read as we consider how to respond to it within our institutional settings, and ways we might continue confronting whiteness in our own disability organizing. Kin to environmental justice, Disability Justice is described as a movement and network of interlocking communities where disability is not defined in white terms, or male terms, or straight terms. I think the author also did a good job engaging with the critique of call-out/cancel culture; however I think in other parts of the book I felt as though she participated in calling out community institutions that are not able to make disability justice an immediate reality. INTERSECTIONALITY We do not live single issue lives Audre Lorde. Historically, the disabled were killed under colonialism and capitalism, and this has led to lasting shame within some marginalized communities. Worker-run. In contrast to disability rights movements, which have focused on gaining inclusion in the nation-state through affirmative legislation and the redistribution of resources, Piepzna-Samarasinha critiques these strategies as exclusionary and inadequate especially for sick and disabled QTBIPOC and traces instead the everyday care webs that participants in Disability Justice knit together to meet these unmet needs. prob would have appreciated more when this came out 2 years ago. Some physically disabled individuals may need structured daily help, while individuals who fatigue often may need to reschedule tasks, which can be challenging to manage. So much incredible food for thought on community care. PIEPZNA-SAMARASINHA, LEAH LAKSHMI. But then nothing else changes: all their organizing is still run the exact same inaccessible way, with the ten-mile-long marches, workshops that urge people to get out of your seats and move! and lack of inclusion of any disabled issues or organizing strategies. Other factors may influence not wanting a caregiver like queerphobia, transphobia, or fatphobia from someone who is meant to be giving care. We don't dream of disability justice because the world we live in is . So many of the movements Ive been a part of in my lifetimethe movements against wars in Afghanistan/Iraq and against Islamophobic racist violence here on Turtle Island, movements for sex work justice and for missing and murdered Indigenous women, movements led by and for trans women of color, movements for Black lives, movements by and for disabled folks and for survivors of abuseinvolve a lot of grieving and remembering people we love who have been murdered, died, or been hurt/abused/gone through really horrible shit., Although containing and denying grief is a time-honored activist practice that works for some people, I would argue that feelings of grief and trauma are not a distraction from the struggle. The more seasoned disabled person who comes and sits with your new crip self and lets you know the hacks you might need, holds space for your feelings, and shares the communitys stories. Questions about how to accommodate those who have come to see a show consistently overshadow any discussion about how to ensure the stage itself is accessible to disabled performers. When doing disability justice work, something to be cautious of is when care networks only emerge in response to emergencies. With such a focus, this book and the movement it describes are critically important for readers and disabled people who have faced such exclusion in community, organizing, and disability studies, as well as those well included in traditional movement/academic spaces who have much work to do to build spaces where no one is left behind (back cover). Which is what we started with, right?, Too often self-care in our organizational cultures gets translated to our individual responsibility to leave work early, go home - alone - and go take a bath, go to the gym, eat some food and go to sleep. Obtain permissions instantly via Rightslink by clicking on the button below: If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. Great on audio and extremely powerful. Grateful for it. Ericksons care collective is not necessarily a care model that will fit all identities or all body/mind disabilities. Read honest and unbiased product reviews from our users. "Care Work is a necessary intervention for those in queer/trans people-of-color spaces and white disability spaces alike, but more importantly, it's an offering of love to all of us living at multiple margins, between spaces of recognition and erasure, who desperately need what Leah has to say. Picture Information. I want to live in a world where we don't have such low expectations of disabled people that we are congratulated for getting out of bed and remembering our own names in the morning. 4.5 stars rounded up. Love, gratitude, and recognition! A great collection of first person stories from a diverse community of queer and people of color disability activists! The CCA in the Bay Area was an attempt to bring a care collective, similar to the one used for the conference, into everyday life. However, touring is an immense privilege, even though it also causes pain to the body, that only some have. We write this review as people variously located in relation to this book those who have, or are beginning to feel, love in disability communities, as well as those who are new to these possibilities. Goodreads helps you follow your favorite authors. These essays are like mini-manifestos, passionate and . Like the title suggests, the book is a dream of a truly accessible and inclusive future for (everyone, but especially) sick and disabled Queer, Trans, Black, Indigenous, People of Colour (QTBIPOC). In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love . Without accessible performance spaces, disabled artists are discouraged from sharing their work with the public, which impedes the creation of community. Im so glad I finally sit down with this one and just knock it out in one sitting; appropriately, I read this cover to cover in my bed, beneath my trusty weighted blanket. These are a few examples of the many joyful intersections of disability justice, care, and pleasure that I'm really fucking lucky to have in my life. Care Workis a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. It is very similar to Leah LakshmiPiepzna-Samarasinhas subtitle for Care Work: Dreaming Disability Justice. Leah and I talked, and they expressed that this name is lovely for our organization. Long marches and conferences continuously asking people to move around is not "justice" -- that is ableism. This totally rocked my world. Care Work is essentially a mapping ofaccess as radical love, a celebration of the work that sick and disabledqueer/people of color are doing to find each other and to build power andcommunity, and a toolkit for everyone who wants to build radically resilient, sustainablecommunities of liberation where no one is left behind. And deep in both the medical-industrial complex and alternative forms of healing that have not confronted their ableism is the idea that disabled people cant be healers., It [i.e. Sins Invalid is a fiscally sponsored project of Dancers Group. This created a space where disabled people, whose identities are often marginalized in mainstream disability rights spaces, could connect with others. Author: Leah Lakshmi Piepzna-Samarasinha. Amazon.com: Customer reviews: Care Work: Dreaming Disability Justice This page was last edited on 23 August 2021, at 16:04. 5 Howick Place | London | SW1P 1WG. Did you know that with a free Taylor & Francis Online account you can gain access to the following benefits? Art is memorable but also replaceable, which makes people feel like they can never say no to doing work. Everything from praying to the goddesses of transformation to help us hold these giant processes and help someone acting abusively choose to change to having cleansing ceremonies along the way., It's not about self-care - it's about collective care. By far the most life-changing, mind-blowing, paradigm-shifting book Ive read in years-perhaps ever. not fixed and living life worth living, care webs, suicidality most useful essays; others less strong. (135). An example Piepzna-Samarasinha gives is how a theatre built a ramp for a performance she was part of, but tore down that ramp when that performance was finished. . People, organizations, and policy-makers are discussing 'disability justice' at length while leaving out its necessary and original context. In Care Work, Leah Lakshmi lays out how crucial it is in the social justice and environmental justice movements. Psychic difference and neurodivergence also mean that we may be blunt, depressed, or hard to deal with by the tenants of an ableist world., I realize how much I have wanted this and not gotten it [good love], realize how much it is branded in my heart that, to be happy, alone, and childless is a fucking gift that most women get brainwashed into relinquishing., Recently, Stacey Milbern brought up the concept of crip doulasother disabled people who help bring you into disability community or into a different kind of disability than you may have experienced before. Historically, people who were disabled were killed under colonialism and capitalism, and this has led to lasting shame within some marginalized communities. My full review is at. About our name: Disability Justice Dreaming was imagined through Disability Justice cross-pollination by Rebel Sidney Fayola Black Burnett. Care Work: Dreaming Disability Justice is a collection of visionary essays on vibrant organizing for Disability Justice that is gathering momentum across the unceded and occupied Indigenous territories in North America. Away we go! Sick, disabled, Mad, Deaf, and neurodivergent peoples care and treatment varied according to our race, class, gender, and location, but for the most part, at best, we were able to evade capture and find ways of caring for ourselves or being cared for by our families, nations, or communitiesfrom our Black and brown communities to disabled communities., For years awaiting this apocalypse, I have worried that as sick and disabled people, we will be the ones abandoned when our cities flood. RECOGNIZING WHOLENESS People have inherent worth outside of commodity relations and capitalist notions of productivity. Their wisdom draws from their experiences as a disabled queer femme person of color in Toronto, Seattle, and the Bay Area doing disability justice work. In a fair trade femme care emotional labor economy, there would no unconsensual expectations of automatic caretaking/mommying. CARE WORK DREAMING DISABILITY JUSTICE. Leah Lakshmi Piepzna-Samarasinha is the Lambda Award winning author of Care Work: Dreaming Disability Justice, Dirty River: A Queer Femme of Color Dreaming Her Way Home, Bodymap, Love Cake, Consensual Genocide and co-editor of The Revolution Starts At Home: Confronting Intimate Violence in Activist Communities. Stepping away from everything you've known. Save each other. 2023 OCLC Domestic and international trademarks and/or service marks of OCLC, Inc. and its affiliates. As opposed to terms like compliance, regulation, standards, or legislation, Care Work invites the reader to long for and imagine what a liberatory future could look and feel like. I wish the book incorporated more of a structural lens (I mean, there was lots of discussion of systems of oppression) but not about erroding public health supports in a way that has made it harder and harder for low income and disabled people to access services that they need and deserve, and communities/families may not be able to provide safely and reliably. Subtopic. Let's dream some disability justice together . "Leah Piepzna-Samarasinha is a poet and essayist whose most recent book, the memoir Dirty River, was a finalist for a Lambda Literary Award and the Publishing Triangle's Judy Grahn Award for Lesbian Nonfiction. At the same time, this disability activist community is all I have, and the care gone into this means a lot. [electronic beeping] ELECTRONIC VOICE: 5, 4, 3, 2, 1. Free delivery for many products! Access is a constant process that doesnt stop. A lead artist with the disability . Disability justice centres sick and disabled people of colour, queer and trans disabled folks of colour and everyone who is marginalized in mainstream disability organizing (22). %PDF-1.6 % I want to live in a world where we value genuine achievement for disabled people. Sometimes, when you leave your whole life behind, it feels blissfully free. And that understanding allowed me to finally write from a disabled space, for and about sick and disabled people, including myself, without feeling like I was writing about boring, private things that no one would understand., Ive noticed tons of abled activists will happily add ableism to the list of stuff theyre against (you know, like that big sign in front of the club in my town that says No racism, sexism, homophobia, transphobia, ableism) or throw around the word disability justice in the list of justices in their manifesto. 3. People, organizations, and policy-makers are discussing disability justice at length while leaving out its necessary and original context. INTERSECTIONALITY Simply put, this principle says that we are many things, and they all impact us. COMMITMENT TO CROSS-MOVEMENT ORGANIZING Shifting how social justice movements understand disability and contextualize ableism, disability justice lends itself to politics of alliance. For the best experience on our site, be sure to turn on Javascript in your browser. Find helpful customer reviews and review ratings for Care Work: Dreaming Disability Justice at Amazon.com. ANTI-CAPITALIST POLITIC In an economy that sees land and humans as components of profit, we are anti-capitalist by the nature of having non-conforming body/minds. But it's also a choose-your-own-adventure story., If white healers slap healing justice on their work but are still using the healing traditions of some folks cultures that arent their own, are primarily working and treating white middle-class and upper-class people, are unaware or dont recognize that HJ was created by Black and brown femmes, are not working with a critical stance and understanding of how colonization, racism, and ableism are healing issues it aint healing justice., Its not about self-careits about collective care. An Ongoing, Virtual Care Web: Sick and Disabled Queers. Get help and learn more about the design. ), offering, compensating, and setting boundaries around emotional care with ones friends and acquaintances. In this collection of essays, longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. (Google). Oh, how I needed this gift of a book. Decolonize our minds, our hair, our hearts. 9781551527390. En stock. The 19 essays in Care Work are divided into four sections. Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha. This makes care webs necessary, but it may lead to the burnout of small groups or small leaderships. Ericksons care collective, which had the same result of many care webs, was a method that worked well for her but relied heavily on people who loved her, her friends. Leah Lakshmi Piepzna-Samarasinha is a Toronto and Oakland-based poet, writer, educator and social activist. $57.66 1 Used from $54.01 3 New from $52.42. And of course none of them think theyre ableist., Disabled Cherokee scholar Qwo-Li Driskill has remarked that in precontact Cherokee, there are many words for people with different kinds of bodies, illnesses, and what would be seen as impairments; none of those words are negative or view those sick or disabled people as defective or not as good as normatively bodied people.9 With the arrival of white settler colonialism, things changed, and not in a good way. Care Work: Dreaming Disability Justice Paperback - October 30, 2018 by Leah Lakshmi Piepzna-Samarasinha (Author) 298 ratings See all formats and editions Kindle $10.49 Read with Our Free App Audiobook $0.00 Free with your Audible trial Paperback $17.95 25 Used from $4.64 26 New from $13.66 Audio CD $27.29 2 New from $27.29 Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Web: Sick and disabled Queers the following benefits and acquaintances say no to doing Work don #. Read honest and unbiased product reviews from our users leaving out its necessary and original context hearts! 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